Meet Nolan our miracle FMD baby. He has been a hero to many young women in the FMDChat community. Nolan's mom is our guest blogger today. We are grateful to mom, Kaitlyn Wisniewski for sharing her experience with us.
|Nolan our Hero!|
I was diagnosed with a rare disease called Fibromuscular dysplasia in October of 2012. At the time I was 6 weeks pregnant with my second child.
|Nolan turns 1 next month! Happy Birthday Nolan, you are loved by many!|
renal artery stenosis which caused uncontrollable hypertension. My blood pressure was around 240/140. I was told it was in my best interest to give up the pregnancy because no one knew if the baby would make it to a viable date or if my body could handle the pregnancy. I needed a surgery that I couldn't have until I delivered. We decided to push our luck a bit and my son and I fought very very hard and made it to 29 weeks! He was born on March 22nd weighing 2lbs 5oz, he is now ten months and thriving! I had angioplasty on my renal arteries and just last week was taken off all of my meds! It's a progressive and aggressive disease with no cure but for now I am winning. Love and hope to all others fighting rare diseases!
|Kaitlyn preparing for her wedding in 2 months!|
Thanks to FMDChat our petition to reinstate our research will be hand delivered in Washington DC by patients on Rare Disease Day!
Please SIGN HERE