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Monday, September 10, 2012

The Patient Movement

Last night was a challenging night for me. I have been off social media for sometime. Oh I will pop on here and there but mostly I have taken a step back.

Tomorrow morning I am scheduled for a test, which as a patient with a chronic illness I am use to. But this test requires me to be off all my medication for several days except my blood pressure meds. I forgot how bad my daily symptoms are without these meds. I have a better appreciation for pharma, because without these medications my quality of life would be a constant struggle.

Back to the topic... The Patient Movement. I thought during my night hours of dealing with my symptoms I would visit twitter. I wanted to get my mind off of what I was going through. What I read at first made me angry, then very sad and disappointed.

So I spoke up. I spoke up publicly and called out 2 doctors for reprehensible behavior. Yes, these doctors have been called out before, and one has a disclaimer basically stating to read his tweets at your own risk.

If I look back at my tweet history I think there was a time I actually defended one of the docs stating they needed an outlet too. I was naive.

Well what I read last night left me feeling vulnerable as a patient. So, I know I can't change the behavior of these two doctors only they can. I just hope they take the time an consider what they say in public does impact patients. It impacted me. I hope I never have to cross paths with these two doctors, but how will I know? They hide behind being anonymous. They are cowards. It is time for them to choose a new profession.

Funny thing is they both have a lot of followers both patients and doctors, what does that say for the patient movement?



my personal fave: The Gram stain of phlegm from AIDS pt with pneumonia... showed SPERM.







Wednesday, January 25, 2012

COUNTRY MUSIC SUPERSTARS TRAILER CHOIR, CHUCK WICKS AND KEITH ANDERSON TEAM UP WITH THE JOE NIEKRO FOUNDATION AND GO TO BAT FOR ANEURYSM RESEARCH

Country Music Superstars Trailer Choir, Chuck Wicks and Keith Anderson have teamed up with The Joe Niekro Foundation for a weekend of festivities in Houston, TX, April 27th and 28th. It’s all in celebration of the 3rd Annual Knuckle Ball...A Pitch for Life, with proceeds benefitting brain aneurysm research, treatment and education.
Friday, April 27th will kick things off at Dan Electro’s Guitar Bar with a special acoustic, in the round performance, beginning at 8P. Patrons will hear hits like Rockin’ the Beer Gutt and Shakin’ that Tailgate from Trailer Choir, Stealing Cinderella, All I Ever Wanted and Old School from Chuck Wicks, and Every Time I Hear Your Name, Pickin’ Wildflowers and Lost In This Moment from Keith Anderson. These hits plus many more will fill the stage and make country music memories, while attendees experience an up close and personal view of these country megastars. The festivities continue at Minute Maid Park on Saturday, April 28th as the entertainers will be joined by athletes from across the country at the 3rd Annual Knuckle Ball...A Pitch for Life, as they pay tribute to the beloved 13-year Houston Astros All-Star, Joe Niekro. At the peak of his Major League Baseball pitching career, Joe Niekro was famous for his command of the knuckleball, a baseball pitch with an erratic, unpredictable motion. Like a knuckleball, Niekro’s life took an unpredictable path on October 27, 2006, when he died suddenly from a ruptured brain aneurysm.
Niekro served 22 years in the Major Leagues, 13 of those with the Houston Astros. He became the team’s first 20- game winner, and remains the all-time leader in wins among Astros pitchers. Teaming up with his brother, Hall of Famer Phil Niekro, the two combined for 539 wins over their respective careers making them the most successful brother combination in Major League history.
In honor of his memory, daughter Natalie Niekro created The Joe Niekro Foundation, with a mission to raise funds for brain aneurysm research, treatment and help bring public awareness to this devastating condition affecting as many as 1 in 15 people.
A number of Astros players, along with former MLB, NFL and NBA Stars, will be on hand at the black-tie gala, featuring a reception, formal dinner, silent and live auction (for a list of previous attendees, click
here). Joe’s brother and Hall of Fame pitcher, Phil Niekro will serve as the evening’s Master of Ceremonies, with a special presentation of The 2012 Joe Niekro Humanitarian Award to Haynes and Boone, LLP Partner and current Chairman of the Board of the Harris County - Houston Sports Authority, J. Kent Friedman.
We invite you to join us for a weekend of fun as we raise money for a condition that is killing thousands every year. For tickets and more information on both events and The Joe Niekro Foundation, visit www.joeniekrofoundation.org/knuckleball.

WHEN: April 27th 8P Country Music Concert
Dan Electro’s Guitar Bar, 1031 E. 24th St. Houston, TX 77009

Tickets: $75


April 28th 6:36P Knuckle Ball...A Pitch for Life (Joe Niekro’s #36 symbolizes the start time) Minute Maid Park, 501 Crawford Street, Houston, Texas 77002
Tickets: Individual Tickets start at $336, with table sponsorships ranging from $5,036-$25,036.

Chuck Wicks
Trailer Choir