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Saturday, April 2, 2011

Fighting Fibromuscular Dysplasia

Just got a phone call from South Africa today from Colleen Botha, Ashleigh's mom. Ashleigh was too ill to speak on skype today. I really missed hearing her giggly voice and seeing her warm smile.  Many of you have been following Ashleigh's story and progress, she struggles everyday with a progressive form of Fibromuscular Dysplasia (FMD). She has one more year left of high school- and currently is having a difficult time making it through an hour of what should be a seven hour school day for her. She continues to loose weight and battle daily with pain. Despite all that she has been through at such a young age, she has remains one of the most inspiring persons I know. Ashleigh was recently featured in the South Africa Sunday Times Health Magazine:

The Botha family has endured so much over the past few years, but continue to brave and strong no matter what obstacles they may face.

I am thankful that we live in an era of social media. I know the awareness of Fibromuscular Dysplasia, would not be were it is today without it. In the past 4 decades little has been written about this disease and research has been minimal. Social Media has made the rare world of FMD not so rare. We are able to send valuable life saving information in a matter of seconds. This has made a impact in Ashleigh's quality of life. If you have not had a chance to get to know this amazing girl and her journey with FMD please take a moment to visit her website:

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