Posted: 12 Sep 2013 11:21 PM PDT In an effort to reach out to the fibromuscular dysplasia community, FMD Chat will be making much of its annual retreat available via the web. While no livestream can replace the experience of meeting other FMD patients and caregivers face-to-face, FMD Chat realizes that many patients are unable to travel due to physical or financial constraints. Patients and others are encouraged to tune in to FMD Chat's YouTube channel from 9:30 a.m. to 3:30 p.m. ET on Saturday, Sept. 14 as presentations are streamed live. On Twitter, follow @FMDChat or the #FMDaware hashtag. Updates also will be posted to FMD Chat's Facebook page. Need some help getting connected? Check out the following resources! YouTube What is YouTube? Twitter Tutorials How To Sign Up How To Tweet, Reply, Follow, Etc How to Engage What is Facebook? When is it Where I am? Time Zone Converter |
Friday, September 13, 2013
FMD Chat Together 2013 — Sharing is Caring
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I had never heard of this until I had a stroke due to FMD. Thank God I recovered from my stroke enough to work some. I had no insurance so I was unable to address my FMD. I was diagnosed 5 yrs.ago now I have insurance so I can see specialist. It's a very rare disease. I just want to make sure I will continue taking care of myself and daughter
ReplyDeleteI am so sorry to hear about your stroke! I understand wanting to make sure you are able to take care of your daughter. I have 2 sons I have the same concern! You may want to join Mayo Connect. They are bringing together FMD patients and families online for support. I really like Mayo Connect because it is secure and does not sell your information as some patients support groups do. I hope you will join me! https://connect.mayoclinic.org
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